Blogs


Half way through chemo
Our Blog By NursingGig.Com
I had my 3rd (out of 6) chemo session a week and a half ago so literally half way through. I haven't experienced the awful side effects that some have, so far. I get gritty eye which eye-drops help with and I get a rash on my chemo hand which diprobase eases. The meds really work for me so after week 1 of the cycle I am able to work from home, which is great.
The 1st 4 days after chemo feel like a hangover and the worst point is day 3. Each day after...

Read More

The new normal
Our Blog By NursingGig.Com
It is hard for me to realise day in and day out that I have survived one of the most challenging times I have ever been through...but survive I have...
I have been on holiday for the first time in my life with my new friends.  Friends I would never have found had I not lost my husband, friends and a support network that I never even realised existed.  20 of us, men and women went to Spain for Easter, we had a brilliant time. Some of Doug's ...

Read More

How the Online Centre can help?
Our Blog By NursingGig.Com
Whether you are receiving benefits and are concerned about these changes or making your first claims (whether under new systems or old), please feel free to message me for individual, private and confidential advice.
 
 If you want to post a more general query, comment or share experiences please join the conversation here. I would really encourage people to do so because – just as with other aspects of our Community – there is real...

Read More

So how is PIP getting on?
Our Blog By NursingGig.Com
It shouldn’t be too early to say but it is, simply because some rather severe teething troubles and logjams in the system mean that there are not enough actual decisions to get a picture of how the PIP system is dealing with difficulties associated with cancer and its treatments.
 
Early concerns amongst Maggie’s Benefit Advisors revolved around how the new systems contrived to mess up “special rules” claims, despite the fact...

Read More

Personal Independence Payment
Our Blog By NursingGig.Com
PIP is gradually replacing Disability Living Allowance for “working age” adults. All new claims since June 2013 have been for PIP rather than DLA.
For existing DLA claimants, invitations to claim PIP instead are due to start going out in October 2015.  This won’t be a “migration” in the same way as the almost completed switch to ESA or the not yet started switch to Universal Credit; you won’t be moved over to PIP p...

Read More

Universal Credit migration
Our Blog By NursingGig.Com
The other big migration is still some way off. When it does start, it may well be a computer exercise; one week you may be getting Income-related ESA, Housing Benefit and/or Working/Child Tax Credits, the next Universal Credit. There will be no need for any new health assessment as the test for e.g. limited capability for work is exactly the same as under ESA.
 
While we don’t know when this “migration” starts, or even when Univers...

Read More

Migration to ESA
Our Blog By NursingGig.Com
The switch from the old “sickness route” benefits – Incapacity Benefit, Severe Disablement Allowance and Income Support (for sickness) - was due to be completed by the end of March 2014. However, this hasn't been achieved, so you may be still be on one of the "old" benefits e.g if you had other long term health issues before a more recent cancer diagnosis; the DWP will write to you soon.
 
The DWP will ask a Health Professional to ...

Read More

An update on big benefits changes
Our Blog By NursingGig.Com
A look at latest changes in plans for welfare reform and the story so far
 
With a massive programme of change going on through the benefits system, I thought this April changes time is a good chance to do a "stocktake' of where some of the key changes for people affected by cancer are up to. So many different dates have been announced that it can feel a little bit confusing, both understanding the changes and keeping up with the changes to those ch...

Read More

A year in remission
Our Blog By NursingGig.Com
This blog is especially for 3 dear friends who have inspired me and helped me to get better. I often wonder if I had not seen Maggie's advertised that sunday afternoon over a year where would I be today.
First of all I have to thank Tracy the Living With Cancer on line support group co ordinator. When I first joined the group I had a lot of emotions I couldnt deal with the worst one being anger. Tracy has over the year taught me how to deal with all of th...

Read More

Widows brain
Our Blog By NursingGig.Com
Onto the bits no one tells you about!  When I first went to see my counsellor 8 weeks after Doug died, I distinctly remember her telling me that I was not to worry I did not have early onset Alzheimers or Parkinsons disease. I have to confess I had no idea what she was talking about at the time and just put it down to her trying to reassure me in some weird way....well now I know!!
Widows brain has been kicking in for a while, I forget everything and...

Read More

Nutrition - Xenoestrogens
Our Blog By NursingGig.Com
In last week’s blog I looked at some information that may support those with prostate cancer and in the blog I mention xenoestrogens. So this week I wanted to explain a little more about these.
Xenoestrogens can be synthetic or natural chemical compounds. Xeno literally means ‘strange’ or ‘foreign’, estrus translates as sexual desire and gene means to generate and are commonly known as ‘hormone disrupters’, or &ls...

Read More

Nutrition - seminar notes
Our Blog By NursingGig.Com
I thought that this week you might like to hear about a lecture that I went on very recently. It was at the Bagnell centre for Integrated Health Care and given by Professor Robert Thomas. He is a professor of oncology working at Bedford and Cambridge University Hospital specialising in breast, bowel and prostate but his passion is about nutrition and self help strategies. It was 180mile round trip to attend, but as you can imagine I was very interested and...

Read More

Well it WAS Pseudomonas!
Our Blog By NursingGig.Com

I've just spent 10 days in hospital on intravenous antibiotics. The Opat nurses (Outpatient Parenteral Antimicrobial Therapy) came and taught me how to do my own intravenous antibiotics. I have a mid line (long line) inserted into a vein that goes all the way up to my shoulder and I have to infuse the drugs three times every day until Saturday morning. I'm using my nebulizer regularly too. I hope this doesn't happen TOO often!! 
 
F...

Read More

Dermatology Now!
Our Blog By NursingGig.Com

Finally had my appointment at Dermatology on 23rd April. He arranged for me to have 3 more blood tests and I've signed the papers to have a punch biopsy on May 6th!!
He gave me Dermol 500 to wash with, Balneum emollient and 1% menthol in Aqueous cream. I do hope all this finally solves my itching problem. He said that whatever is causing it, was probably brought on by chemotherapy. Another gift from cancer then!! 
 
...

Read More

getting fit.
Our Blog By NursingGig.Com
Feeling good, now been told got to lose weight,so far lost half stone just by watching the amount I eat, I gave up chocolate for lent that will help towards it and have taken up extra walking and getting fit for a charity walk for cancer in my home town in wantage in April, my husband and children have been doing it since it started this is its 3rd year, Hopefully it will be a dry day and will be fun.
Find out more
If you'd like to know more, visit www.m...

Read More

Multitasking or perhaps not......
Our Blog By NursingGig.Com
Once  a year I play in a band for  a local musical company   - at a rehearsal the other day the producer  asked if the band could  answer the cast during a chorus by singing a reply – I nodded and listened to the words and tune preparing to  sing it back  with enthusiasm  - 
Admittedly it was at the end of a long rehearsal but then as I started to play I realised I was at a disadvantage  to some of t...

Read More

Easter Break
Our Blog By NursingGig.Com
The Easter Holiday weekend is fast approaching. For many of you this is something to look forward to, however, for others it can be a stressful or lonely time as you face uncertainty, have symptoms or side effects to manage, or are  facing the loss of someone close to you whilst trying to put on a brave face for others around you.
 
If  you are having guests at home, or are spending time away , the following tips  and a bit of plannin...

Read More

The start of it all.
Our Blog By NursingGig.Com
A week earlier on the Monday I had been potentially discharged from Dundee after months of eye operations.  No further appointment in the post = discharge. 
 
Tuesday I went into my local hospital for the mamogram / ultrasound.  The experience was somewhat confusing different hospital, different check in procedures, a different labyrinth to negotiate.
Eventually I was placed in a consulting room.  I waited... and waited and.... ...

Read More
 

Total Blogs: 18