Blogs


What is PIP and what does it look like?
Our Blog By NursingGig.Com
Personal Independence or PIP is a new benefit joining the family of “disability benefits” PIP will occupy a similar much valued place in the benefits system (see below).
PIP is eventually going to replace Disability Living Allowance for working age adults. Children and DLA claimants already over 65 in April 2013 will be left alone for the time being, but there are no completely new claims for DLA being taken from people aged 16 to 64 after 10t...

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OH BOY, SURPRISE, SURPRISE
Our Blog By NursingGig.Com
Another good night for Maureen she was sleeping so peacefully when I came to bed, I was up every 45 minutes so a normal night for me.
Up at 06:00 to take my meds Maureen did her mouthwash and cleared the mucus build up the we slept until my mobile went off at 07:24 it was my baby sister Cath letting us know she had just got on the train for Preston!
 
So it was up to do my bloods etc. and make coffee and OH BOY, SURPRISE, SURPRISE Maureen asked for...

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Oh Dear a Step Back
Our Blog By NursingGig.Com
I was awake a lot for most of last night but managed not to disturb Maureen, although Maureen slept well at 05:30 she had an acid reflux episode which was quite a bad one after taking some gaviscon it did settle down some, then my angel got me my medication. We then dozed until 07:15 and I made coffee for Cath and myself Maureen decided not to have any this morning but she did have an ensure+ via the rig.
 
We all spent the morning up until 11:00 wh...

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It's A Long Journey
Our Blog By NursingGig.Com
Maureen had a fair night and me well let's say I did drop off about 6am after my meds, Maureen got up about 07:30 I stayed in bed until 08:30.At 08:45 Maureen had a feed and is now back in bed reading as she doesn't know which way she is going to be yet you know the feeling maybe after a big night out only, Maureen hasn't had a big night out.09:02 My blood glucose levels are sky high (23.6) or USA measurement about 424.8 I think it is because of the pain a...

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Still waiting!
Our Blog By NursingGig.Com
Well, I've had my bone density scan. I don't know the results - worse still, I haven't been given the Anastrazole tablets I'm supposed to be taking for the next five years!! In two weeks time I will see my Oncologist, so If I haven't had them by then I will ask her about them. But as it is now six weeks since chemo finished and I'm not having any other treatment, I'm starting to get a bit worried. After all, she did say she would contact my GP to arrange f...

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Nutrition - berries
Our Blog By NursingGig.Com
This week I got my inspiration for this blog because it is Wimbledon fortnight and when I think of Wimbledon apart from the fabulous tennis I think of strawberry cream teas. Now I am not suggesting that we all indulge in cream teas but I am inspired by the very positive research on berry fruits and cancer. I thought this week we could have a look at some of these because they are very much in season, some of you may even have them in the garden.Berry fruit...

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Maureen has gone out for a walk
Our Blog By NursingGig.Com
Up at 05:15 Maureen woke me up to give me my meds we then went back to sleep until 06:30 when a delivery chappy woke us up
 
I did my routine BM's, BP, Insulin and Victoza and Maureen did her usual routine Caphosol, Morphine, Ant-Acids etc.
 
And then after a doozy of an angina attack followed in quick succession by 2 more I went back to bed until 09:40 you know they can really knock you for six when they happen like that.
 
10:30 Maur...

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17 weeks and small changes
Our Blog By NursingGig.Com
Fast approaching 17 weeks now and I am feeling very low and down but I realise this is normal and I am starting to make a few small changes.  Still haven't got around to sorting Doug's clothes out and dont feel ready to yet but I am having some building work carried out in the garden, very stressful but necessary and I know he would be pleased to see the plans we had finalised and finished.  Life chunders on at a fast pace these days and I h...

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So today was a good day
Our Blog By NursingGig.Com
I had a disturbed night and of course that disturbed Maureen she was so sweet though putting her carers hat back on just for me after medication I did sleep and the rest of the early hours went by with comfort and Maureen said she had a fair night but with some acid trying to make an appearance, gaviscon took care of that.
 
We got up at 08:00 Maureen went through her routine as I went through mine (my BM's were high again) then Maureen went back to...

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A Crème Caramel !
Our Blog By NursingGig.Com
A good night's sleep was had by the two of us Maureen woke me up at 05:30 to give me my meds and we then went back to a full sleep until 08:00.Maureen did her routine of mouthwash with Caphosol, checked her rig and took her meds and had a breakfast meal, I did my usual stuff and am glad to say my BM's were back down to a more respectable 8.9.09:31 Mo went for a shower and then we had a delivery from Tesco's you know it has really proved so helpful for us t...

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On The Road To Recovery
Our Blog By NursingGig.Com
Another bad night for me thankfully I didn't disturb Maureen too much, I took some Oramorph at 03:00 and that just made me a little more comfortable, took my meds at 05:45 and slept a little Maureen got up at 07:30 and went through her routine I stayed in bed not being able to move without a great deal of discomfort, Maureen went into the sitting room and relaxed on the sofa reading her book.
 
08:45 I tried getting up again and managed to do my BM'...

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falling down
Our Blog By NursingGig.Com
well the title says it all!!! I have fell over mentally and physically, the latter from too much to drink - I have only myself to blame and I really do not like the person I have become so today is a new day and a fresh start.  I have been up and crying for hours because I cannot go on like this and it has taken a bump to my face and confidence to make me realise it, no more!  That is no more drinking I cannot vouch for the tears.
 
Find o...

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Week three
Our Blog By NursingGig.Com
Somehow I have managed to get my diagnosis, have a mastectomy and get to three weeks post op without accepting that I have cancer. But today it has come home to roost and having learned on Thursday that I need both chemotherapy and radiotherapy I have accepted it is happening to ME. I have to change my life to accommodate all that is going to happen in the coming months good and bad and I hope this blog is going to help me. Watch this space!
 
Find ...

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Oh to feel like 'me' again.....
Our Blog By NursingGig.Com
Sunday evening.  The tennis player named after a favourite mint of mine has triumphed at Wimbledon, the barbeque has been cleaned and the young ones are tucked up in bed, safe as yet from the trials and tribulations that can stop us in our tracks as effectively as the tool the police use to stop renegade drivers - the stinger. How dearly i pray that life will be kind to them.  Amanda, my wife, is ensuring that the TV remote control ...

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Love changes everything....
Our Blog By NursingGig.Com
Warbled Michael Ball in Lloyd Webbers 'Aspects of love'.  Unfortunately, so does the onset of cancer. 
Yet the 2 words love and cancer, are inextricably linked.  I always knew that i loved my wife and adored my kids - but the intensity of those emotions intensified like a sauce reducing under intense heat , through diagnosis, surgery and this bizarre state of (hopefuly) recovery that i know find myself in.  I w...

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The assessment process
Our Blog By NursingGig.Com
Self Assessment 
The first stage is a self assessment questionnaire PIP2: How your disability affects you. The DWP will send you this after you have registered your claim along with a prepaid envelope for its safe return within 4 weeks.   This asks you to comment on how you are affected in each of the 10 Daily Living Activities and the 2 Mobility Living activities.
Next week I will take a look in more detail at the points system used, some...

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How do I claim PIP?
Our Blog By NursingGig.Com
The process is the same whether you are making your first claim or whether you are an existing DLA claimant responding to an invitation to claim PIP after October 2013. 
The starting point is a telephone call to the DWP on 0800 917222.
The DWP very much want you to complete this initial part of the claim within this call, but you can just register the claim and ask them to send you an individualized PIP1 claim form for you to complete. All they real...

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Who can claim Personal Independence Payment (PIP)?
Our Blog By NursingGig.Com
To be able to claim PIP you must:

Be aged over 16 and under 64 when you make the claim
not be a “person subject to immigration control” (with a few exceptions)
have been resident in Great Britain for two of the last 3 years and be habitually resident in the UK
and last but by no means least meet the disability conditions i.e meet the criteria for either the enhanced or standard rate of one or both of the two PIP Components and thereby han...

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Nutrition - sunscreen
Our Blog By NursingGig.Com
Do you think this is summer? It certainly feels that way. So this week I thought that it may be a good idea to look at safe sunning and sunscreens. There is a huge amount of literature and research into sunscreens and whether they are safe to rub into our skin or not because of the ingredients that they contain. A lot of the research into this  is observational and casual so quite hard to quantify, but there is no doubt that some of the ingredients in...

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Tried Eating was a Disaster
Our Blog By NursingGig.Com
Maureen had a fair night as did I Maureen was up a couple of times the last at 05:15 so she woke me up to give me my meds then we both slept/dozed until 08:00 got up I did my bloods, insulin and victoza Maureen did her mouthwash, and other meds, I made myself a coffee and now it is 08:26 Maureen is in bed reading and I am at my desk of course.
 
09:30 Maureen went to see the practice nurse to have some granulation removed from the area around her ri...

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Frustration is.....
Our Blog By NursingGig.Com
Not being able to walk half a mile before wanting to rest.
Being incapable of mowing the whole lawn without a break.
 Lying awake at night, desperately tired but unable to sleep.
Knowing that more than 1 glass of Gevrey Chambertin will make me feel rough.
Having low INR results 2 weeks running, and not understanding why, which leads to Mr worry appearing on my shoulder again.
Feeling that straight forward tasks at my workplace which i used t...

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Ebooks
Our Blog By NursingGig.Com
Having decided it was time to accept the obvious I felt the next step was to get more information. I started with Maggies Blogs Getting Started 1-4. It was helpful in hi lighting the importance of being a participant in the process rather than just being along for the ride. I also found a book reference, a surviving chemotherapy self help book, which I bought online for my iPad. So now I have some serious reading to do before I can do anything else.
 ...

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Pleasure, food, eating and diet ...
Our Blog By NursingGig.Com
Since my last entry I have been reading and generally getting more information especially around chemotherapy. One of my worries about chemo is the effect it will have on my diet as before diagnosis I was on a hospital prescribed weight loss diet. I have read that some people actually gain weight during chemo and that it changes yoru sense of taste. Having struggled to get a healthy diet that I enjoy I am worried that it will all go to pot. 
I have j...

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Sunshine and cancer treatments....
Our Blog By NursingGig.Com
I’ve been reading CarolineH’s blog today on Nutrition and sunscreen, and it got me thinking about how a sunny day lifts our mood…people smile more…and there seems a general feel good factor in the air.However, I’m aware that for many of you mid, and post cancer treatment, sun is a mixed blessing. For some people on a range of medications, including some chemotherapies, as well as radiotherapy, they are best avoiding direct s...

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Down the other side of the pyramid
Our Blog By NursingGig.Com
Back home on Monday. Robert has been through hell the last two weeks. They were right about it being worse the two weeks after treatment, it was heartbreaking to watch him. He has developed lymph-oedema in his neck and looks a bit like a giant turkey as he puts it. His face, lips and neck were awful, covered in sores. He was also in awful pain. He is still in hospital but is over the top of the pyramid, as the doctor put it, and getting better every day. H...

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Total Blogs: 198